Next month, families affected by the rare genetic disease metachromatic leukodystrophy (MLD) will meet in Washington. They will be protesting the April…
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post Nixing the Newborn Screening Advisory Committee Is Ill-AdvisedRead more
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post  “De-extincted” Dire Wolf Pups Have a Few Genetic Tweaks – That’s ItRead more
The images of “de-extincted” fuzzy white dog-wolf pups festooning the media this week accompany reports that are so hyped that the technical…
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post The Sunflower House Reveals the Horror of Himmler’s Lebensborn ProgramRead more
Hitler’s “final solution” attempted to strip the German population of Jewish people and others deemed not white. At the same time, the…
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post Why I Deleted My 23andMe Data. Will an Ancestry Chart Become a Yellow Star?Read more
When I heard that 23andMe had filed for bankruptcy, I wasn’t alarmed, at first. I’d taken a test from the company, years…
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post Measles Erases Immune Memory, Stifling Protection from Other InfectionsRead more
Measles virus has long occupied a top spot on a list of most dangerous pathogens, for in addition to spreading easily, it…
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post Study Identifies 7 Genes Associated with Brain Aging and 13 Drugs that May Help Extend the HealthspanRead more
Consider two 70-year-olds. Cliff seems slightly confused and forgetful, and has difficulty following conversations and instructions. Roxanne is always alert and leads…
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post Will Bird Flu Bring the Second Pandemic of the Century? Will We Be Ready?Read more
As memories of the COVID years fade, fears of a coming influenza pandemic are mounting, given recent transmission of H5N1 bird flu…
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post Rare Disease Day 2025 is Postponed – Why?Read more
Every year near the end of February, Rare Disease Day honors the 30 million people in the US who have 10,000+ rare…
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post Removing The CDC Vaccine Assessment Tool Will Do HarmRead more
My daughter Carly has an annual physical approaching. With infectious diseases on the rise, she asked me to repost CDC’s Adult Vaccine…
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post “The Dressmaker’s Mirror: Sudden Death, Genetics, and a Jewish Family’s Secret” Traces a Long-ago Tragic Accident to an Inherited Heart DiseaseRead more
On a muggy midsummer morning in Brooklyn in 1916, 4-year-old Eugene was practicing somersaults, flipping and rolling, as nearby, his mother stitched…
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post A Genetic Crystal Ball: When Newborn Genome Sequencing Findings Explain Illnesses in RelativesRead more
In 2019, I wrote about how sequencing the genomes of newborns might compromise their privacy if genetic information was not adequately protected…
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post The Dangers of “Do Your Own Research” and “Believe in Science”Read more
During the pandemic, we turned to our leaders for updates on the rapidly worsening, unprecedented situation. As days turned to weeks, and…